SURVEY

Dear Sir/ Madame,

I would ask you to please take part in an anonymous survey dedicated to people suffering from psoriasis. The survey is supposed to demonstrate the significance of the supporting groups, from which people suffering from psoriasis take benefits during the process of their professional and social activity, relations between other people and acceptance of the sickness.

Elicted answers will only be used as an utility in order to write a doctoral thesis.

Thank you for the time you sacrifised to fulfill the survey.

Secured
1

When were you diagnosed with psoriasis?

2

On which parts of your body do you have symptoms of psoriasis?

3

Is having exposed and very exposed skin changes make you feel:

4

On a scale from 1 to 10, please, rate how the disease affected your life:

5

Which of those afflictions do you experience? (You may choose more than one)

6

What method are you being treated with?

7

What kind of problems did psoriasis cause in your life?

8

How does your family react to your disease intensifications?

9

Is psoriasis a reason of problems in your personal relations with your partner?

10

Does the disease makes you feel sad or depressed?

11

What was the reaction of the closest society to psoriasis?

12

Do you search for some support on the Internet?

13

If you marked the answer YES in a previous question, then what does make you interested in the most?

14

How often do you use Internet to look for the support?

15

What kind of support do you get from Internet acquaintances?

16

Are you in touch with other people suffering from psoriasis?

17

Do you find it easier to be supported on the Internet than in a real life?

18

Would you recommend Internet acquaintances to people suffering from psoriasis?

19

Do you find it easier to be supported on the Internet than in a real life?

20

Do supporting groups make you feel more confident in professional and social relationships?

RESPONDENT'S PARTICULARS:

21

Where are you from?

22

Age:

23

Sex:

24

Marital status:

25

Education level:

26

Place of residence:

SCIENTIFIC ACCEPTANCE (AIS)

Please comment on each statement by marking on the scale from 1 to 5 the number that best describes your current state. Make your selection by ticking the appropriate number. Every answer is good as long as it is true.
27

I have trouble adjusting to the limits imposed by the disease

28

Due to my state of health, I am unable to do what I like the most.

29

Illness makes me feel unnecessary sometimes.

30

Health problems make me more dependent on others than I want it to.

31

Illness makes me a burden to my family and friends.

32

My state of health makes me not feel like a full-fledged human.

33

I will never be self-sufficient to the extent that I would like it to be

34

I think people who are with me are often embarrassed by my illness.

Thank you for completing the survey

Social Support Scale (BSSS)

I. Below are statements about relationships with people. Please answer how much you agree with each of the statements. Your answer is marked on a scale of 1 to 4. There are no good or bad answers in this poll, and the survey is completely anonymous.

Answer scale:

1 – Totally not true2 – To a small extent true3 – Moderately true4 – Completely true
35

There are people who really like me

36

Whenever I feel bad, others show me that they feel sympathy for me

37

Whenever I'm sad, there are people who raise me up

38

There is always someone who comforts me when I need it

39

I know people I can always rely on

40

When I’m worried, there is someone who will help me

41

There are people who offer me help when I need it

42

When I cannot get by anymore, then there are some people who will help me

II. Please think about the person who is closest to you, such as your spouse, partner, child, friend or someone else.

How did this person behave towards you in previous week?

Answer scale:

1 – Totally not true2 – To a small extent true3 – Moderately true4 – Completely true
43

This person turned out to love me and accept me

44

This person was with me when I needed her

45

This person comforted me when I felt bad

46

This person left me alone

47

This person did not show much understanding for my situation

48

This person complained about me

49

This person was concerned about all my issues

50

This person made me feel valuable and important

51

This person expressed concern for my condition

52

This person has assured me that I can rely on him/her completely

53

This person helped me find something positive in my situation

54

This person suggested what I could do to not think of my situation

55

This person encouraged me not to give up

56

This person cared for things that I could not personally deal with

57

. Overall, I am very satisfied with this person's

Thank you for completing the survey.

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