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Dear Sir or Madam, please consider taking 10 minutes to answer this questionnaire


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Who are you for the person with amyloidosis?

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What type of amyloidosis does your relative suffer from?

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On a scale of 1 to 10, How do you understand the patient’s illness?

For which of these tasks do you assist the person you are caring for?

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How much time do you spend assisting the person you are caring for?

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Have you had to adapt your job to be a caregiver?

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Have you given up social activities to be a caregiver?

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Does being a caregiver have an impact on your income?

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Does being a caregiver have an impact on your morale?

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Does being a caregiver have an impact on your health?

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Do you receive support from other people close to you to help you cope with the situation?

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As a caregiver, I often feel powerless in the face of amyloidosis.

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I'm afraid I won't be up to the job as a caregiver

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The ill person is grateful for the efforts I make to help them

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The illness has strengthened my emotional ties with the person who is ill

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I feel I sacrifice my life for someone who is ill

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I'm worried about what would happen if I could no longer carry out my role as a caregiver.

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Overall, how would you rate the impact of amyloidosis on your quality of life as a caregiver?

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Your gender

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How old are you ?

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Country of residence :

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Thank you for your time and your feedback.

As part of the AMYlife study, we value your participation and the insights you've provided. If you feel comfortable and would like to contribute further, we invite you to share more about your journey with amyloidosis. Your story can help raise awareness, foster understanding, and provide support to others facing similar challenges. You can express your wish to be contacted by writing to the following address : amylifestudy@gmail.com